Chronic Illness: New and Old Ideas to Care for Children
Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project.
What is a Chronic Illness?
Explains to children what their ill friend or relative experiences and what they can do themselves.
Dealing With a Health Condition
Explains teenagers how to cope, to take control, deal with others.
Shared Vision
Complete article (also as PDF) on longterm needs, financial and medical planning.
Children and Grief
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
The Child With a Long-Term Illness
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
Promoting Resilience in Youth with Chronic Conditions and their Parents
Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
Pain and Chronic Illness in Children
Short paper on the importance of pain management.
Adolescents Psychological Complications of Chronic Illness
Information from The Child Health Library of Children's Hospital of Pittsburgh.
Living with Childhood Illness and Disability
Resources page by the Center for Children with Special Needs includes handouts on safety, Disability Act, school preparation, the Internet.
Teenagers and Coping with Chronic Illness
Tips and strategies for parents with newly diagnosed teenagers.
Bandaides and Blackboards
Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories.
Parental Advise on Coping with Chronic Illness of your Child
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
Starbright Foundation
Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms.
Youth in Transition
Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management.
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