Camps
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Centers
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Conferences
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Fundraising
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News and Media
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Organizations
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Personal Pages
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Research
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Support Groups
(7)
Testing
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CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
Cystic Fibrosis Health FactSheet
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
Irri Shark's Page
About the '65 roses' story.
Home Page-Harminder
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
CF Advantage
The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz
Cystic Fibrosis I.Q. Test
Test what you know about cystic fibrosis.
A-Z Directory of Cystic Fibrosis Resources
Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
CF Prescriber
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
Clayton Bates Cystic Fibrosis Support Site
For family, friends, and other supporters to find out about the disease and offer support for Clayton.
Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers.
Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
Cystic Fibrosis Links
Cystic Fibrosis Links and Information
Cystic Fibrosis Resource Center
Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
Jewish Genetic Diseases - Cystic Fibrosis
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
Manual for Cystic Fibrosis Patients and their Families
From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.
MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
Medline Plus - Cystic Fibrosis
A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
PulmonologyChannel
Information on cystic fibrosis.
Pulmozyme.com
Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc.
The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
The Breathing Room
Guidance about the art of living with cystic fibrosis.
Cystic Fibrosis Management
Article detailing therapeutic options for co-management.
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