The Sanfilippo Children's Research Foundation
Canadian based charitable group founded by the parents of Elisa Linton.
Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
Bennett Children's Foundation
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
Children's Medical Research Foundation
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
Julia's Hope--The Sanfilippo Syndrome Medical Research Foundation, Inc.
A non-profit organization incorporated under the laws of the State of Nebraska to promote research toward a cure for Sanfilippo Syndrome and related disorders in children. Events, grants, and Julia's story.
MPS III: Sanfilippo Syndrome
Information, including the causes, different forms, the inheritance and how the disorder progresses.
Special Child: Disorder Zone Archives - Sanfilippo Syndrome
Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
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