Morquio
Yahoo message group that offers support to those afflicted with mucopolysaccharide accumulation.
Mucopolysaccharide Disorders
Describes the various types and looks particularly at behavioral and educational issues. Put together by the psychologist Michael B. Brown, Ph.D.
Fairview Health Services (USA): Maroteaux-Lamy Syndrome
Talks about what the disorder is and treatments being used in clinical trials.
Family Village Library: Mucopolysaccharidosis
Lists types, places to chat, and websites.
The MPS Cup
A star studded fantasy hockey game and auction, allowing participants to play along side some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.
The Canadian Society for Mucopolysaccharide & Related Diseases
Founded to provide information and support to affected individuals and their families.
The Society for Mucopolysaccharide Diseases
A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
National MPS Society
Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.
NINDS Mucopolysaccharidoses Information Page
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
NORD: Mucopolysaccharidoses
Offers a list of synonyms, a general discussion and further resources.
The Ryan Foundation
A non-profit organization supporting research for those suffering from Mucopolysaccharidosis, or MPS and their families. Articles, including one on the Ryan's current health status, and links.
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