Porphgroup
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
Porphyria
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
Me and AIP
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
EPP
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
Porphyria: The Unknown Disease
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
Acute Intermittent Porphyria Forum
Information and links about Porph. Includes registration form for an email list.
Canadian Porphyria Foundation
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
Porphyrias: Diagnosis and Treatment
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
King George II and Porphyria
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
Diagnosing the Porphyrias
An article by Thomas G. DeLoughery, Associate Professor of Medicine.
Pediatric Oncall
Information on porphyrias including the various types and its management.
Prophyria in Charlottesville
An e-mail sent to Professor Huskey from a person working on a rescue squad.
Suite 101
Offers links and articles about Porphyria.
Porphyria
A look at the different types of these disease and some of their characteristics.
Porphyria Page
A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
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