National PKU News
Organisation providing information and news to families and professionals. Includes general information about the condition, dietary advice, research, personal stories and support.
Phenylketonuria
Definition, causes, symptoms and treatments.
Genes and Diseases: Phenylketonuria
Brief genetic information.
Medline Plus: Phenylketonuria
Definition, causes, symptoms and treatment.
Pediatric Oncall
In-depth look at Phenylketonuria (PKU). Includes symptoms, diagnosing, newborn screening, treatment and follow up.
PKU-Info.org
Provides general information, plus links to organisations, suppliers and mailing lists. Also includes a forum. [English and German]
PKU Exchange
Offering a UK food database, exchange calculator, recipes, and articles. Includes a message board.
Children's PKU Network
Organisation offering education and direct assistance. Includes details of projects, plus links to food suppliers.
Firstplay Dietary Foods LTD
Range of low protein food products for adult and child PKU patients on a low phenylalanine diet.
Tuxes for Tia
A fund raising event for PKU research on behalf of the Piziali Family Foundation for PKU. Learn about phenylketonuria.
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