Contact a Family: Pierre Robin Syndrome
Main features of the condition and possible causes.
Chase's Story
Personal account of one child's experience of this condition. Includes photographs.
Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
NORD - Pierre Robin Syndrome
Sample report, plus links to organisations. [Fee required for full report]
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